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  • Liz Murtaugh Gillespie
  • Sep 25, 2015

I was dreading this third round of chemo a bit. Round three hit a friend of mine harder than any other. (Remember Suzy? She and I shared an infusion suite on her final chemo treatment and my first.) On the one hand, I wondered if I was comparing apples and oranges. Suzy got higher doses of more chemo drugs than I'm getting, because she's fighting off lymphoma, not breast cancer. On the other, I struggled to shake off that bummer of a heads-up I got from an acupuncturist — the one who advised that chemo would hit me harder and harder with each dose. When I relayed that line to a social worker I met with the morning of my third chemo treatment, she shook her head and said, "Wow ... that is not true for many people! What an unfortunate thing for someone who's supposed to be focused on healing to say to you!" I know, right?! Alas, here I am, feeling better the first couple days after this third treatment than I have with the last two rounds. Seems to be a pattern, so maybe it's time to quit wondering when/if the chemo shoe's doing to drop and kick me. In other anxiety-reducing news, I got some more insight on for the four extra sessions I'll be getting in the second "half" of chemo (I say half because the first half is 8 weeks and the second half is 12). The biggest side effect of taxol, a drug that's not nearly as hard on the body as the adriamycin/cytoxan cocktail I'm getting now, is neuropathy (usually temporary, but sometimes permanent numbing of the the tips of fingers and toes).

The weekly treatments, which they give in relatively light doses, tend to lower the risk of neuropathy. Not all people can or are willing to double the number of chemo infusions they cram into their schedules. Those folks go with two more dose-dense options: four treatments ever two weeks or every three weeks. My oncologist says there isn't widespread agreement, or many (any?) studies comparing the effectiveness of the biweekly and triweekly treatment options. But there have been studies showing that 12 weekly treatments are more effective than four dose-dense treatments every three weeks. Anything that'll increase my odds of beating cancer has my vote. So 12 taxol treatments, it is. Last week, when I griped about the 12 vs. 8 thing (which I learned about it the same day I said bye-bye to my hair), it felt like a bigger bummer than it does now. And I should stress that it has nothing to do with any shift in my docs' view of how I'm doing or my prognosis for a full recovery. It's just a moment in time when one doctor's standard of care is different than another's, and when even one doctor recommends different cycles for different patients. Enough with all the medical stuff. The fun part of round 3 was — once again — having great company. This time, it was my dear friend Rainee Johnson, who took most of a day off work to hang out with me, making the hours pass quickly and brightening my smile with a most awesome Liz vs. Red Devil collage ever (see above), featuring photos of me and my sweet family, a couple fabulous gaggles of girlfriends, my mom and brother ... and my happy face superimposed on Arnold Schwarzzeneger's ridiculously ripped body. Yep, I'm strong like that, just not all oiled up and creepy looking.

I didn't have time to share a play-by-play recap my second chemo treatment — aside from a quick Facebook post thanking my friend and former AP night editor Kathy McCarthy for her fine company and my family for a surprise visit. The abridged version is that I did as well with it as the first, if not better. Aside from a few low-energy days and a nagging but not-quite-NOT-nauseous feeling, I've been fine. Even got back to lap swimming the day before round 3. I felt pretty bad ass getting in the water with my bald head and half rack. The shy side of me almost wanted to wear a swim cap, but man, that would've been silly. And though there are fancy swim suits with pockets for faux breasts, I'm going with a comfortable lap-swimming suit and feeling no need to hide my acceptance of my one-breasted self. Some of you in my Facebook world have been asking about recent flare-ups in "parent-kid-sibling drama." I'm not one to complain about how hard parenting can be. Sort of feels like noting that grass is green or Fox News is stupid. I also feel that the compassionate thing to do is to weather my family's ups and downs with Sean as my co-captain, spitball the pros and cons of what's worked and hasn't worked with the closest of friends, and figure things out day by day. We're doing OK (even on days when we wonder if we are). If it weren't for the stresses and exhaustion of dealing with cancer at the same time, we'd probably all be struggling less with getting along. We've had a few good days in a row, so we'll ride this wave and the tide will keep turning (or some other mixed metaphor). The Monday-Wednesday household and child care help that our fine friend Mary Murray has lined up for us has been a HUGE help as Sean gears up for two trials (which thankfully got postponed a bit) and as I juggle work and chemo, sometimes hitting energy/patience walls before the kids wind down for bedtime. We are so lucky we don't have to wonder what we'd do without all the support we're getting from so many people in our lives. Every day, there's someone to thank ... then another ... and another. I thank all of you for keeping tabs on how I'm doing and cheering me on. You're always saying what an amazing job I'm doing as I soldier through all this. But know this: All the strength I'm mustering doesn't come exclusively from me. It comes from all of you, too. And for that, I am impossibly grateful.


  • Liz Murtaugh Gillespie
  • Sep 15, 2015

It started falling out in the faintest of wisps — a few hairs at a time, the day after my second chemo treatment. Then this morning, most of my blond mop molted off my head as I brushed my hair after my shower. The shock of it made me cry. Sean hugged me close, then Sylvia scampered off to get me one of the cute hats I've collected for the months of baldness that lie ahead.

After dinner and Tyler's soccer practice tonight, Sean and the kids lovingly took turns shaving my head, with Katy Perry belting "Roar" in the background. Tyler struggled through it, clearly spooked by the sight of me with most of my hair in clumps on the floor. Even Pepper (our pug) wigged out a little, at one point staring straight at me and growing deeply as if to say, "Who in the F are you, lady?! Where's Lizzie?!!!"

I knew this day would come, and I talked a good game about being ready for it. I wasn't. But I'll get over it. As I walked upstairs to see if I could shower my head smooth so my hats wouldn't keep snagging on needles of stubble, Sean said, "Lizzie, you're beautiful. You've already got a little bit of that Grace Jones thing going on." After my shower, Sylvia pulled me aside and said she had a song to play for me: Just the Way You Are. My eyes got misty when she said, "Listen to this part, Mommy."

"When I see your face

There's not a thing that I would change

'Cause you're amazing

Just the way you are

And when you smile

The whole world stops and stares for a while

'Cause girl, you're amazing

Just the way you are."

Some cancer warriors I know have said getting over the shock of hair loss was hard. I didn't expect to struggle with it, really. But here I am, surprised at Sean's astute observation that I bid my left breast good-bye with greater ease than I did my hair. My best attempt at an explanation: I don't have to show the world my ex-breast. I do have to get used to running into people at my kids' school or work or on a jog who haven't seen me in a while and say, "Yep. Cancer. I'm doing great, all things considering. How was your summer?" In one of the many pep talks he's given me over the past few months, my brother wrote me today that I should view my bald head as a badge of courage. I'll give that a try, even on the days when my weariness with cancer doesn't make me feel especially courageous. Before the head shave today, I tried to keep these words from Malcolm Gladwell's David and Goliath in mind as I added four additional chemo dates to my calendar in November and December — after learning that I'll need 16 total treatments, not 12 as my oncologist had previously advised:

"Courage is not something that you already have that makes you brave when the tough times start. Courage is what you earn when you've been through the tough times and you discover they aren't so tough after all."


  • Liz Murtaugh Gillespie
  • Sep 4, 2015

One week and one day after round one of chemo, I'm feeling remarkably healthy — gratefully so and with a short new 'do I'm calling my onramp to bald. I've always liked Tyler's buzz in the back/mop on the top, so I decided to get my own version of it for the last week before my hair starts to fall out.

It took me most of the week to admit to myself that I was going to miss my hair. The thought of running into people who haven't seen me in a while or who don't yet know I have cancer and seeing their eyes bug out has me on edge a wee bit. I'll get over it. It'll be fine. Cute hats and head scarves will get me through the next few months. And for the next week, I'll enjoy my mop buzz. Looking back on this first week of chemo, I really am surprised it went as smoothly as it did. I was prepared to feel a lot lousier than I ever did. I fended off a mild fever during my first few days after treatment, but didn't get any of those icky aches and chills that most fevers bring. At one point, I got just a half of a degree below the 100.5 call-your-doctor/go-to-urgent care temperature. Other than that, I hovered in the mid-99s as I napped and read, napped and read, never had any nausea, ate well and got good rest, as my mom helped around the house, cooked, got the kids tucked into bed at night, etc. By Monday morning, that jittery internal jackhammery sensation that felt like it was buzzing throughout my body on day one had faded away. I worked 3/4-ish days for Monday through Wednesday, then took it easy on Thursday and Friday — working a little but mostly hanging out with my mom. Each day I worked, time flew in the company of my fantastically supportive mentor, Teresa Moore. At one point, after I'd been plugging away for a few hours — all focused and in my zone — she got up from her desk and walked across the office just to give me a hug and say, "Look at you. You're doing so great. I'm so glad you're here." Some friends have asked me if I've thought about joining any support groups. I might check one out someday, but honestly, all the love and food and helping hands I've been getting day to day from family, friends, neighbors and colleagues makes me feel like I have my own 24/7 on-call support group. It's humbling. Truly. I don't expect every round of chemo to be as easy on me as this first one was. An acupuncturist I talked to a couple weeks ago was asking me if someone would be giving me a ride to my treatments. When I said heck no, I live a block away, he said, "I hope you're up to that walk after your treatments. Some of my patients have trouble even getting out of bed." ... "And of course, each treatment hits you harder and harder and HARDER." As I listened to him, I felt a quiet surge of holy-shit-it's-not-going-to-be-that-bad-is-it? dread. My memory of that second remark has twisted his words into a much harsher version of what he actually said. But still ... really? Come on, man. You need to work on your talking points there a little bit. I haven't looked up "cumulative effects of chemo" on the interwebs or in any of my cancer books. Just feel like the sanest approach is to keep taking things one day at a time, not worry about problems that some (or even most) people have with chemo, and just deal with one situation at a time. Folks have been asking how Sylvia and Tyler are holding up. The short answer is very well. They don't show any signs of feeling scared or anxious about cancer. They're extra gentle when they hug. They ask age-appropriate questions. Tyler (6), when I come home from a doctor's appointment: "So, you don't have cancer anymore?" Sylvia (8): "When you get your new breast, will it look like the other one?" We're learning that the "normal" ups and downs of parenting kids this age (i.e., fits over the slightest shift in plans, or the way they bicker/pick fights with each other morning, noon and night) can drain our patience much more quickly than usual. I've said more than a few times, "I can't fight cancer and keep fighting with you at the same time." Alas ... the challenges of parenting two young kids don't miraculously fade away just because cancer's intruded into your family. So, we're doing the best we can, trying not to let the crummy days get us down too much, taking deep breaths, laughing ... all things that get you through life with or without cancer.


© 2024 Liz Murtaugh Gillespie

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