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  • Liz Murtaugh Gillespie
  • Feb 6, 2016

I'm short on time these days, folks. So here's a haiku that sums up the good, the bad, and the is-what-it-is:

Radiation's fine. Insomnia's a bitch. Somehow I'll survive.

I could and will say more ... sometime when I can get a couple, few days of decent sleep -- in a row would be dreamy! -- and feel like a clearer-thinking human than I do most days lately. Until then, know that I'm holding up fine through radiation. It's a time suck that's throwing off my work-life balance in ways that can make me sad and mad and in over my head. Nothing I didn't expect. Wish I could deal with it without whining about how hard it is some days. I go in for my 12th treatment tomorrow, just a few away from the halfway point. What? Halfway point? Already? Wow, OK. Time for this tired mama to call it a night. Send me lots of good fall-asleep-and-stay-asleep vibes, please. Thanks.

  • Liz Murtaugh Gillespie
  • Jan 20, 2016

"When you're ready, take a deep breath ... and hold it." I heard those instructions over a loud speaker during my first of 30 radiation treatments today — about 20 times. Why? It's what I have to do to get my heart as far out of the way of the "radiation field" as possible.

Radiation is serious stuff, people. They don't want it messing with my ticker. Some women are built differently and don't have to monkey with this breath-holding business. Not me. Before each dose of radiation, I'll have to take in a great big breath, hold it, think about how nice it is that I'm not drowning or anything imminently life-threatening, then let it out and wait to do it all over again. I'm making it sound like bummer. It's not, really. OK, it is a little bit. I'd been crossing my fingers and toes that I'd be able to do it the "easy way." When I asked my mom if she had to do the breath-hold thing when she was kicking cancer, she said a) "No." and b) "What do you mean 'breath-hold thing'?" Turns out it's a relatively new technique — one that wasn't offered as an option when she was treated for breast cancer almost four years ago now. All right, all right. I'm getting over it. I'm embracing this for what it is: progress. So here I am. One treatment down, 29 to go. Once a day Monday through Friday. I'll wrap up early March.

Today's session took almost an hour, longer than the rest of them will. My treatment team had to make double, triple, quadruple check that all the calculations in my treatment plan were spot on. They took X-rays from four different angles and compared them to scans taken a couple weeks ago when they mapped everything out. They made a few adjustments before giving me four doses of radiation via a space-age machine that rotated around me.

Here's where I'm getting radiated:

  • Most of my left chest, where my ex-breast and two tumors used to be.

  • My underarm about halfway down my ribcage, where I had all eight lymph nodes removed, six of them cancerous.

  • The area above my left collarbone, the hub of lymph nodes that's closest to knot of my formerly cancerous lymph nodes. There's no sign of cancer there. They're zapping this area because if my cancerous lymph nodes drained any cancer anywhere, they'd have drained it here.

The main side effects I’m told to expect are:

  • Sunburn-like situation on the skin where I’m getting zapped, hopefully not bad and only in the final few weeks. Will my super sensitive skin, which has gotten sunburned through clothes before, crack or blister? Let's hope not. My mom’s given me some goat milk cream that worked wonders for her. She only got a mild burn during the final week of her radiation therapy.

  • Fatigue, since my body will be working hard to repair the tissues that are getting radiated.

Some bummers/anxiety inducers:

  • I’ll likely have to quit swimming for a while, since chlorine can irritate and dry out healthy skin and wreak havoc to unhealthy skin.

  • There’s no way to spare the tip of my left lung from radiation it doesn’t need, so I’ll get a “lungburn” that will heal eventually but remain somewhat scarred. If I get a CT scan when I’m 70, whoever gets the first look at it might say, “Well, lookie here. You got radiation awhile back, didn’tchya?”

  • Radiation increases my risk of lymphedema (serious arm swellage).

  • Because I’m young, I run a higher-than-average risk that radiation will give me – wait for it – CANCER! All I can do with this one is laugh and dismiss. I'm just gonna choose to believe that the risk of such a stupidly cruel irony is stupidly low.

In other news ... my hair's starting to grow back! We call it my "chickie fuzz." I'm not ready to retire my hat collection yet. I'm gonna wait until there are more hairs per square inch than scalp.

  • Liz Murtaugh Gillespie
  • Dec 30, 2015

My, oh, my ... December sure was a blur. I came close to posting a quick update or three these past couple weeks. Instead, I took naps. Lots of naps. Good for me, huh? I needed that rest and then some. So ... here's what's new with me:

  • Bell's palsy was a big fat bummer that was harder on me than chemo (no joke!), but it's mostly over; I have about 95% of my smile back, my right eye is blinking normal-ish-ly again, and the pulsating ear pain (related to the inflamed facial nerve that caused the BP) is mostly gone.

  • My doc says my speedy turnaround bodes well for 100% recovery from BP.

  • I'm done with chemo!

  • Once Bell's palsy hit, my oncologist declared that eight treatments of taxol was enough (vs. 12, which I'd been scheduled to get).

  • I got my chemo "port" out today. Glad I had it while I needed it; it made it easier for the chemo drugs to get in me and do their thing. Glad (very glad) it's gone now.

  • Sean and I met with my radiation oncologist today and learned all about the next phase of my treatment: six weeks of daily zapping that will begin in mid-January, once they map out exactly where and how the radiation machine will zap me.

  • Next Monday, I'll go in for a two-hour session where they'll position me and the radiation machine with crazy precision, then take all kinds of measurements they'll use to do the calculations that will tell the machine what to do for each of my 30 radiation sessions.

  • It'll take about two weeks (TWO WEEKS!) to do all those calculations. That just blows my mind.

  • I'll be getting radiation on my chest wall, the area under my arm where they took out all my lymph nodes and on the lymph nodes below and above my collar bone, since those are the closest lymph nodes to the ones that got removed when I had my mastectomy.

  • Six of those lymph nodes had cancer in them, which is the main reason I'm getting radiation therapy. It's like scorching the earth — burning any possible trace of cancer that might still be lingering inside me.

  • Each session will last about a half hour.

  • I am not super pumped at the prospect of making 30 trips to and from Capitol Hill over six straight weeks; I'll get over it.

  • Love this statistic: The radiation therapy I'm getting will reduce the risk of cancer recurrence by 70 percent. Nice.

My mom and brother have been visiting for the holidays. It's been great to have them here. We've done a whole lot of lying low — saw The Force Awakens together. Star Wars was the first movie I ever saw in theaters. I was 3 when it came out in 1977. So seeing the latest iteration with Mom, Frank and my kids was a treat. Now, with just two days left in this shitbird of a year, I'm looking forward to a happier, healthier 2016. Cheers to that, right?

© 2024 Liz Murtaugh Gillespie

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